Local groups

Austria

Trisomie-X-Kontaktgruppe Österreich
Pfarrhofgutweg 8
5400 Hallein
martina.lydia@gmx.at
http://www.klinefelter.at/trisomie_x

Australia

The Association of Genetic Support of Australasia
66 Albion Street
NSW 2010 Surry Hills
Phone: +61 2 9211 1462
info@agsa-geneticsupport.org.au

X&Y Chromosome Variations Support Australia
Ms. Monica Bray and Ms.Rebecca Waters
20 Lamb Street, Lilyfield
NSW 2040 Sydney
Phone: 61 2 9818 8981
Email: monicabray@ymail.com or bec_a_boots@hotmail.com

Denmark

Triple-X Foreningen i Danmark
Ms. Anelli Frandsen
mail@Triple-X.dk
http://www.triple-x.dk

France

Valentin Association de Porteurs d’Anomalies Chromosomiques
52 La Butte Eglantine
95610 Eragny
France
Tel: 33 (0)1 30 37 90 97
contact@valentin-apac.org
http://www.valentin-apac.org

Germany

LEONA – Familienselbsthilfe bei seltenen Chromosomenveränderungen e.V.
Kreihnbrink 31, 30900 Wedemark
Tel. +49 (0) 5130 37 49 92
info@leona-ev.de
http://www.leona-ev.de

Triplo-X-Kontaktgruppe
Wegenerstr. 15, 89231 Neu-Ulm
Tel: +49-(0)731-98490 16
info@triplo-x.de
https://www.triplo-x.de/

Deutsche Gesellschaft für Humangenetik e.V. – Beratungsstellen
https://gfhev.de/de/beratungsstellen/beratungsstellen.php

Greece

To Mellon-Association of people with genetic disorders Dr. Helen Fryssira
Medical genetics, University of Athens, Aghia Sophia Children’s hospital
Makrinitsas 16
115 22 Athens
Phone: 30 21 06420821
info@tomellon.com.gr

Ms. Irene Simeonidou
Kalamos Galissa
84100 Syros, Cycladhes
Greece
Phone: +30 6977660860 & +30 2281062198
iren_simeonidou@yahoo.gr

Ireland

Inclusion Ireland
Ms. Finula Garrahy
Unit C2, The Steelworks, Foley Street,
Dublin 1 DUBLIN
Phone: +353 (0)1 8559891
info@inclusoinireland.ie

Italy

Associazione Sindromi Cromosomiche e Genetiche Clinica Pediatrica
Università di Ancona
Ms. Raffaella Formato Urbinati
Via F. Corridoni 11
60123 Ancona
Phone: 39 071 33633
segr.clinicapediatrica@univpm.it

Netherlands

Contactgroep Triple X Syndroom
Thea van de Velde en Ida Bakker
p/a Langsteek 15
5641 NG Eindhoven
The Netherlands
info@triple-x-syndroom.nl
http://www.triple-x-syndroom.nl

Norway

Frambu-Senter for sjeldne funksjonshemninger
Kontaktperson for trippel X:
Eva Elisabeth Næss (fagkonsulent/fysioterapeut)
Telefon: 64 85 60 40
een@frambu.no
http://www.frambu.no

Poland

Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
Ms. Hanna Maciejewska
Os Lecha 4
60-293 Poznan
Phone: 0 607 222 72
gen@gen.org.pl

Romania

Organizatia trebuie- Bacau
Ms. Didina Obreja
Str. Nicu Enea, 42A-271
600191
Bacau
Phone: 00 40 234 544 565
trebuie@yahoo.com

Sweden

The mother of a young Triple X girl, who’s diagnosed in 2008, created a blog on the internet. She tried to translate information and debate her thoughts on the subject. Unfortunally the blog stopped in June 2009.
http://trippelx.wordpress.com

Facebook group: https://www.facebook.com/groups/374382809416696/

Switzerland

Association Enfance et Maladies Orphelines
Ms. Bhira Meyer
2 rue du Simplon
1870 Monthey (Valais) 1
Phone: 41 (0)24 473 20 10
info@aemo.ch
http://www.aemo.ch

United Kingdom

Rare Chromosome Disorder Support Group
G1, The Stables, Station Road West, Oxted, Surrey RH8 9EE, United Kingdom
Tel. +44(0)1883 723356
info@rarechromo.org
http://www.rarechromo.org

Triple-X Family Network Support Group
Helen Clements
32 Francemary Road
London SE4 1JS UK
Phone: 44 (0)208 690 9445
helenclements@hotmail.com
http://triplexsupportgroup.homestead.com

United States

Genetic.org KS&A
P.O. Box 461047
Aurora, CO 80046-1047
Phone (Toll-Free): (888) 999-9428
Outside U.S. / Canada: (303) 400-9040
info@genetic.org
https://genetic.org/
Local support groups: https://genetic.org/im-adult-looking-answers/support-groups/